Testimonials

Testimonials

Thanks to many participants who allow the research team to share unidentified feedback and testimonials on the website.

During TENS study

I just wanted you to know I wet myself last week – which sounds like bad news – but is good news !

I have noticed that I can hold myself longer overnight which is excellent.  I usually wake and go around 3 pm but this has been stretched out until 5 am ish. And then 400 mls ish.  I feel very rested. 

My bladder was able to recover more quickly from leakage caused by over filling so I didn’t have consecutive leakage.

Noticing some change now. Really encouraging.

Esier to pee, better sensation, better bladder emptying, no UTI.

My bladder function has fully improved and it did even more when I using level 8 with tens device. 

I have not been needing to use the catheter at all for the past 2 weeks and I’m feeling great about it. 

I really hope that it produces good results for more people – who can then potentially avoid bladder enlargement surgery.

No, bladder has stayed constant. Bit disappointed, really. Bowels are more active than previously but not in a huge way.

Post-TENS follow-up

My bladder function is doing well, I have not been using catheter for the past months now so a lot has improved. I believe I may still need to use TENS device at times but so far so good, I am getting by great independently.

I’ve been without Cath throughout and I’m loving it 😊 I do however believe I still need to use the TENS device, I think if I was to use the TENS device for at least 6-8 months, my body will react to it positively in the end. 

I’ve had no leakage since I started using TENS again and have had volumes of up to 450ml overnight with no leakage. It’s made life much less stressful!

I would like to inquire about purchasing one of the TENS devices I used in the trial last year. I remember there was a question in maybe the last survey I completed asking if I would be interested in purchasing a TENS machine, to which I did answer “yes”.

Would it be possible to purchase one? But the main reason is for my bladder function. Although I still did experience some leakage during the study last year, it was definitely less than I would have had without TENS.

I want to ask about resuming the tens therapy, I’ve noticed the urine flow has reduced despite strong bladder spasms. Could you let me know what I need to do – re ACC or information about the type of tens machine.

I will keep monitoring the bladder function for another month to see if anything will change, unfortunately, I’ve learned that with this injury nothing happens overnight.